Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Tuesday, October 25, 2011

The Goal

 Have you ever set a goal for yourself, then wondered how in the world you would accomplish it?  We all do.  Sometimes the task is huge and maybe we're not quite as knowledgeable as we want others to know.  But we don't want to admit it.  Unrealistic...or attainable...  Right???  Okay, maybe it hasn't happened to you...but it has happened to me.

Years ago we learned about an interesting program for children with special needs.  It involved a unique interaction between the kids and dolphins.  Dolphins are smart.  They are able to sense things that we humans sometimes miss.  Dolphins (you've seen it with some dogs) pick up on a persons ability and feed on it.  They'll be gentle with the fragile older woman and rambunctious with the teen.  People realized that dolphins have this uncanny way of sensing things and saw that disabled people were also relating to the dolphins in a good, positive way.  They took it a step further and found that often disabled children would be particularly motivated to "work" if the reward was a treat with a dolphin.  Speech and occupational therapists found this work/reward system to be successful in many children.

Back to Matthew.

After we learned about the program I called and got more information.  It sounded like great fun.  Yes, it was expensive but maybe we could see some benefit.  We got on their waiting list.  The wait was long...I'd almost forgotten about it when, in the spring two years later, I got a letter inviting us to schedule a in the summer.  I was so excited!  Something fun.  It might help Matthew.  We can call it a vacation.

Until I read the qualifications:  Cannot be afraid of water.  Uh, oh.

Let me just tell you that Matthew has a healthy respect for water.  He doesn't take a shower because he doesn't like water on his head.  He never gets too close to the edge of a lake or river, always choosing to throw rocks from 'way back there'...  And swimming lessons???  Yeah, right.  We tried.  Many years we tried.  Always the same, screaming kid, scared of the water.

I know you're laughing thinking, "Good grief, that should have been that.  But the pictures???"  And you'd be right.  That should have been that. 

But we said, "Let's do it.  We'll schedule for the end of summer."  Talk about setting a goal.  I was not sure we would make it.  Still, we'd give it our best shot.

Luckily, Phoenix has a special pool that offers lessons to those with special needs.  I signed Matthew up.  I think they would only let us sign up for a month at a time.  Day one came and we got to the pool.  Matthew had been there before and it hadn't been pretty.  In his usual manner he turned around and grabbed on to me wrapping his arms and legs better than any octopus.  I would say his voice was loud and boisterous but shrill and shrieking would be more correct.  I love that pool.  It's 5ft at the deepest so the entangled two of us walked out to mid pool.  When I finally managed to get him unwrapped he discovered he'd grown.  He was standing in the middle with water only to his waist!  Score one for mom.

But learning to swim was a different story.  No, he did not want to put his face in the water.  No, he did not think it was fun to float on his back.  No, he was not going to jump off the side of the pool.  The teachers were good.  They worked patiently with him each day.  Day after day.  Every two weeks he was evaluated.  I think you had to reach Level 3 to be an independent swimmer.  He was at Level 1.  May ran into June and June into July.  One thing I have learned about Matthew is that the more times he does something the closer he is to mastery.  (I know...that's the same for most of us...)  We decided that once a day wasn't enough and began going back to the pool in the evening.  Rebecca also got some lessons and showed us how it could be done.  We were well tan that year.  We knew all the lifeguards and teachers by name, along with their class schedule and future goals.  But still Matthew was barely putting his face in the water.  Still screaming.  Still scared. 

August rolled around and I was pretty worried.  He had made progress but was still at Level 2.  Should I call the dolphin place?  Dear God...hear my prayer...  Had I really set a goal we could not reach? 

Then it happened.  We're in the pool (as usual).  Matthew screaming and flailing (as usual).  But then the teacher stepped away.  HE WAS SWIMMING!  Oh my goodness!  It was so exciting.  As soon as Bob got off work we went back to show off.  It wasn't a fluke.  He was swimming! 

One week later we were on the plane to Florida.  The size of the lagoon where the dolphins lived was pretty intimidating.  I won't lie and tell you the first day or two was easy but he did it.  He worked hard, tried to say the words, and loved his rewards.  On the last day I overheard one of the trainers telling another that the dolphin wasn't listening to him.  He was right, the dolphin was responding to Matthew.

So if you have what might seem an insurmountable task think of Matthew.  A lot of patience.  A lot of effort.  And a super lot of determination.  Amazing what we can do.

Tuesday, October 11, 2011

Matthew: Photographer!

Lego Island Snapshots

All parents want their child to find a hobby that inspires them; to be an author, pianist, paint or sculptor, etc.  Parents with special needs children are no different.  But when your child is nonverbal and has trouble with fine motor skills it's not always easy to pinpoint what it is that he can do...or do well.

I say this knowing those around Matthew will quickly point out how much he loves to play on the computer, work puzzles, care for soft furry animals, and loves to read (and share) his TV Guide.  Yes, those are good hobbies and keep him busy but they are "different".  They point more to Matthew's obsessions than to any noteworthy achievement.  Today he achieved a new title: Photographer.
Matthew's European Travels

Over the years Matthew has had great fun taking pictures.  I've shared some of them with you.  Gotta love the digital cameras.  Sometimes there would be dozens of shots of the back seat of the car or the cat hiding underneath the table or the puppy's soft, soft ear...   We noticed long ago that Matthew's pictures gave us a special insight to how he views things.  But it was still somewhat surprising when we discovered hidden among the expected pictures some real gems.  Grandma even thought Matthew should have a special display wall which we printed as part of our redecorating project.


A few months ago an organization called Mosaic, provider of services for handicapped kids and adults in the valley, sent an email about their special 25th Anniversary celebration.  (You can read more about their locations and services by clicking link: Mosaic.)  They invited community members to participate by providing artwork.  Since Matthew's pictures are a such unique perspective I wrote them and offered some of Matthew's some for display.  Not only did they say yes, but wanted to meet Matthew and see more of his work.  Well, what can I say?  We were happy to share.

Master of the Mouse!
To answer your question, no, I did not let Matthew pick all the pictures.  Had he done so they might have all been like the pictures above on the right.  You don't recognize them?  Of course, they are from the Lego Island computer game that Matthew loves so much.  He takes pictures of the game, lots and lots of them.   He also would have chosen shots of taken as he is playing.  Sometimes he sets the camera on the table and takes pictures of his hand playing the game like on the left. Sometimes he takes pictures of himself looking at the game. And when bored with the computer, how about taking pictures of the well worn videos...  No, mom chose the pictures.

Matthew was allocated a whole table for his display!
We managed to narrow it down and selected a stack to take down to the Mosaic office.  They delightedly took all the photos and invited us to be guests at the celebration.  I knww Matthew was excited as he took a zillion pictures last week just because he was thinking about it...  Sister and some friends also joined us for the celebration with Mosaic (but you know we were there mostly to admire the pictures.)  One friend asked if we considered entering some of his pictures in photography contests.  Maybe we will.

Today Matthew is not autistic, brain injured, multiply handicapped. No, today Matthew is a Photographer.
Matthew's Display Information